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Reference Links

Reference Links Related to Advocacy, Family & Health

www.scinfo.org National Sickle Cell Organizations (International list and contact information)

https://www.sicklecelldisease.org Sickle Cell Disease Association of America Inc.

www.onescdvoice.com oneSCDvoice Sickle Cell Community

www.scdcoalition.org Sickle Cell Disease Coalition

www.hematology.org American Society of Hematology

www.ampainsoc.org The American Pain Society

www.cdc.gov Centers for Disease Control and Prevention

www.medlineplus.gov  Genetic conditions

www.nhlbi.nih.gov National Heart, Lung and Blood Institute

www.nationalpcf.org National Pediatric Cancer Foundation

www.bethematch.org Be The Match: Donate Marrow and Blood Stem Cells

www.gatewaylg.com/events Families of children with Autism spectrum