
Reference Links
Reference Links Related to Advocacy, Family & Health
www.scinfo.org National Sickle Cell Organizations (International list and contact information)
https://www.sicklecelldisease.org Sickle Cell Disease Association of America Inc.
www.onescdvoice.com oneSCDvoice Sickle Cell Community
www.scdcoalition.org Sickle Cell Disease Coalition
www.hematology.org American Society of Hematology
www.ampainsoc.org The American Pain Society
www.cdc.gov Centers for Disease Control and Prevention
www.medlineplus.gov Genetic conditions
www.nhlbi.nih.gov National Heart, Lung and Blood Institute
www.nationalpcf.org National Pediatric Cancer Foundation
www.bethematch.org Be The Match: Donate Marrow and Blood Stem Cells
www.gatewaylg.com/events Families of children with Autism spectrum